Keep building momentum in Parliament for NICE review
September 15, 2017
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MP’s are urging NICE to review Guideline on ME
Author: #MEAction
Finding Connection within M.E.
September 14, 2017
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During the initial years of having Myalgic Encephalomyelitis (ME), it is common to watch all your interpersonal ties slowly dissolve. Being in my early 20s, those around me craved excitement, adventure, and new experiences. Those things I desired too, but little of which I could do or offer in my current state of health.
LA LECTURA IMPORTA ¡VAMOS A OÍRLA!
September 12, 2017
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La desaparición de mi capacidad de leer extensamente es una de mis mayores pérdidas. Lo intento, pero las páginas se petrifican. Ahora debo contentarme con unos pocos párrafos; algunos días con un par de líneas.
Urge your MP to sign EDM 271!
September 9, 2017
19 Comments
We need your help for parliament to recognise the strength of feeling about NICE guideline review
Need Help Recovering from Hurricane Irma & Harvey?
September 8, 2017
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Let us know if you need help recovering from Hurricanes Harvey & Irma. We are planning to share the needs of hurricane victims with the ME community on our Facebook page. If you would like to make your needs known to the ME community, please fill out this form: Loading… If you have any questions,
Why Society Shuns People with ME
September 4, 2017
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Listen to the audio version recorded by Anna Ruddock @annalouruddock Cindy Downey wrote this editorial as a response to the opinion piece, “The Emotional Toll of Not Being Heard,” published by Christina Baltais. Artwork by Cindy Downey. Thank you, Christina, for your eloquent comments about the emotional toll from the wall of stigma that surrounds ME.
The Emotional Toll of Not Being Heard
August 31, 2017
5 Comments
This story won’t be particularly unique or shocking to anyone living with ME. Every single one of us has a plethora of stories like this, and far worse than this. It has happened so many times over the last 11 years. What shocks me is the degree to which it still occurs and manages to affect me, no matter how much time I spend trying to advocate for ME.
Transitioning from an Abled Life
August 21, 2017
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When a sudden and unexpected illness catapulted my life into a completely different path, life as I had come to know it, was irrevocably changed.
FITNET trial criticised in Behavioural Sciences journal
August 18, 2017
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Severe ME patients publish paper questioning central findings of Dutch CBT/GET trial
Scientists gather for ME/CFS symposium this Saturday: Watch online!
August 8, 2017
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Influential scientific researchers in the ME/CFS community will come together this Saturday, Aug. 12 for a one-day community symposium focused on the molecular basis of ME/CFS at Stanford University Palo Alto, California. Register here to join the livestream and be part of the conversation. View the agenda here. (DVDs can also be ordered for $15 from