La desaparición de mi capacidad de leer extensamente es una de mis mayores pérdidas. Lo intento, pero las páginas se petrifican. Ahora debo contentarme con unos pocos párrafos; algunos días con un par de líneas.
We need your help for parliament to recognise the strength of feeling about NICE guideline review
Let us know if you need help recovering from Hurricanes Harvey & Irma. We are planning to share the needs of hurricane victims with the ME community on our Facebook page. If you would like to make your needs known to the ME community, please fill out this form: Loading… If you have any questions,
Listen to the audio version recorded by Anna Ruddock @annalouruddock Cindy Downey wrote this editorial as a response to the opinion piece, “The Emotional Toll of Not Being Heard,” published by Christina Baltais. Artwork by Cindy Downey. Thank you, Christina, for your eloquent comments about the emotional toll from the wall of stigma that surrounds ME.
This story won’t be particularly unique or shocking to anyone living with ME. Every single one of us has a plethora of stories like this, and far worse than this. It has happened so many times over the last 11 years. What shocks me is the degree to which it still occurs and manages to affect me, no matter how much time I spend trying to advocate for ME.
When a sudden and unexpected illness catapulted my life into a completely different path, life as I had come to know it, was irrevocably changed.
Severe ME patients publish paper questioning central findings of Dutch CBT/GET trial
Influential scientific researchers in the ME/CFS community will come together this Saturday, Aug. 12 for a one-day community symposium focused on the molecular basis of ME/CFS at Stanford University Palo Alto, California. Register here to join the livestream and be part of the conversation. View the agenda here. (DVDs can also be ordered for $15 from
The Solve ME/CFS Initiative is disappointed to report that the projected estimates for FY 17 are being reported at lower numbers than expected.
Last week, the House Appropriations Subcommittee on Labor-HHS zeroed out the $5.4 million line item for Chronic Fatigue Syndrome at the CDC….again. Tell your members of congress to restore the funding for ME/CFS for next year’s budget. We cannot abandon the progress we’ve made so far!
