The Solve ME/CFS Initiative (SMCI) held its second annual Discovery Forum Saturday October 14. The forum dubbed “a new era in ME/CFS research” brought together leaders from academia, government agencies, private clinics, biotech and research institutions to discuss developments in the field of ME/CFS research.
Keep up-to-date on this issue by following the Twitter accounts @mecvsnieuws and @ME_gids More than 10,400 signatures for the Dutch petition ‘ME is not MU(P)S’ (Medically Unexplained (Physical) Symptoms) was presented to Prof. van Gool, president of the Dutch Health Council three weeks ago on September 18th. The petition aims to hold the Dutch Health Council
Announcing Discovery Forum 2017: A New Era in ME/CFS Research
The #TimeForUnrest campaign has officially kicked off, and these are some of my reasons for for why it’s #TimeForUnrest.
1. People are dying.
The National Institutes of Health (NIH) announced today the outcome of its ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) competitive consortium grants, marking an unprecedented and tangible commitment from the federal agency to the disease. The NIH announced four recipient teams; one Data Management Coordination Center (DMCC) and three Collaborative Research Centers (CRCs).
On September 8th, Nevada’s full Congressional Delegation sent a letter to Director Collins of the National Institutes of Health urging him to “strengthen and accelerate” its work on ME/CFS.
On Sept. 7, the ME/CFS community breathed a sigh of relief as the Senate Appropriations Committee recommended restoring the $5.4 million Chronic Fatigue Syndrome program under the CDC.
A national, televised program on ME/CFS aired this month on the show, “The White House Chronicle,” with host Llewellyn King.
MP’s are urging NICE to review Guideline on ME
During the initial years of having Myalgic Encephalomyelitis (ME), it is common to watch all your interpersonal ties slowly dissolve. Being in my early 20s, those around me craved excitement, adventure, and new experiences. Those things I desired too, but little of which I could do or offer in my current state of health.
