Two years ago, our then 10-year old son started to complain of a stomach ache that did not resolve. Other things seemed wrong, too. I did not want to be an alarmist and waited an appropriate amount of time before calling for an appointment, thinking there would be a simple solution.
Once upon a time, I woke up on fire. This burning was one of invisible flames, curling themselves around me and offering nothing but excruciating pain and the sort of exhaustion which bears down on you like a weight your whole body must carry.
Dr. Sarah Myhill has launched a campaign calling on all patients who feel that they have been harmed by the PACE trial to join her in writing to the General Medical Council (GMC), which oversees doctors in the UK. You do not have to be a UK citizen to participate. Dr. Myhill has sent a letter of
A Westminster Hall debate on the PACE trial has been scheduled for Tuesday, 20th Feb., 11-11:30 a.m. Carol Monaghan MP has secured the debate. Please urge your MP to attend the Westminster Hall debate to learn about the flawed science behind PACE, and how it has affected policy on Myalgic Encephalomyelitis (ME) in the UK,
The Time for Unrest event at the Scottish Parliament on 30th January was an opportunity to raise awareness of Myalgic Encephalomyelitis (ME) among Members of the Scottish Parliament (MSPs), and ask them to take action to support the 21,000 people with ME in Scotland. Attended by over 70 people, it attracted an unprecedented number of
ME advocate Mary Dimmock has written a comprehensive report about the flawed science that led to the recommendation of cognitive behavioral therapy (CBT) and graded exercise therapy (GET) for people with Myalgic Encephalomyelitis. The patient community has long reported these treatments to be ineffective and harmful, and, yet, health societies and governments across the world
The Solve ME/CFS Initiative recently partnered with the widely-circled women’s magazine “Ms.” and connected them with renowned author Julie Rehmeyer to produce an impactful piece on ME/CFS for the Winter 2018 issue.
Tuesday 24th Oct., 2017 will long be remembered as a significant day for anyone involved in ME politics.
The Solve ME/CFS Initiative (SMCI) announced the recipients of the 2017 Ramsay Award Program on Tuesday. The Ramsay Award Program, now in its second year, is a competitive grant that funds ME/CFS researchers at every stage of their careers. The five winning proposals receive one year of funding to research a diverse range of topics including immunology, bioenergetics, metabolomics, microbiome and neuroendocrine biology. The awardees hail from six different countries across the globe.
This past spring I attended a screening for Unrest at the Ted Rogers Cinema in Toronto. Something powerfully transformative happened during the screening. Something that can’t be articulated in a review.
