#MEAction, Author at #MEAction Network

Extended deadline – Attend the NIH Conference with a Scholarship from #MEAction!

January 29, 2019 No Comments

#MEAction is currently accepting applications from medical students and practicing medical professionals to attend the National Institutes of Health meeting on myalgic encephalomyelitis (ME) research on April 4th-5th, 2019 in Bethesda, MD. The application is now due at 5 p.m. EST on Tuesday, February 26th. The goal of the meeting is to showcase high-quality studies to better understand the state of the science

Historic Parliamentary Debate Shaped by People with ME

January 25, 2019 8 Comments

Listen to the article: On Thursday 24th January 2019 a historic debate took place. Over 40 MPs from across the political divide sat in the House of Commons to debate a motion on myalgic encephalomyelitis (ME), with 27 making impassioned contributions on behalf of their constituents. Together they unanimously passed this motion: “That this

Register Now for ME/CFS Advocacy Week 2019!

January 22, 2019 2 Comments

Listen to the article: #MEAction and Solve ME/CFS Initiative (SMCI) are excited to announce a joint partnership for ME/CFS Advocacy Week & DC Lobby Day 2019! The week of meetings with representatives, call-in actions and online events will take place from Monday, April 1 to Sunday, April 7th. The keystone event, Lobby Day 2019, when hundreds

Join the virtual demonstration in support of the ME debate!

January 22, 2019 3 Comments

Listen to this article on #MEAction’s Soundcloud here On Thursday afternoon, 24th January, MPs from all parties will be debating a motion put forward by Carol Monaghan MP in the House of Commons. The motion covers biomedical research funding, the suspension of GET and CBT, updated training for medical professionals and unjustified child protection procedures.

What can you do before this Thursday’s ME debate?

January 22, 2019 2 Comments

Listen to this article on #MEAction’s Soundcloud here This Thursday 24th January, myalgic encephalomyelitis (ME) will be discussed in the main chamber of the House of Commons, as Members of Parliament from all Parties debate a motion on ME put forward by Carol Monaghan MP. We want this debate to be the catalyst for substantive

UK Parliament will debate ME in historic House of Commons debate

January 21, 2019 No Comments

UK PARLIAMENT WILL DEBATE ME IN HISTORIC HOUSE OF COMMONS DEBATE FOR IMMEDIATE RELEASE Parliament has announced that it will debate the treatment and funding of patients with myalgic encephalomyelitis (ME), a debilitating and serious, multi-systemic disease. The ME debate will take place in the Main Chamber on Thursday afternoon, 24th January. This debate follows

Take Action Now! The UK debate on ME has been granted

January 17, 2019 6 Comments

Listen to this article on #MEAction’s Soundcloud here We are delighted that Carol Monaghan MP has managed to secure a debate in Parliament on Thursday afternoon, 24th January. This debate has been confirmed by the Backbench Business Committee and will take place in the Main Chamber. Carol Monaghan has been pushing for a Main Chamber

Tell NICE your experience of CBT/GET. Take the survey now!

January 10, 2019 1 Comment

The National Institute of Health and Care Excellence (NICE) is rewriting the UK ME guidelines. As part of this process, the Forward-ME Group, of which #MEAction UK is a member, has prepared a questionnaire to provide additional evidence on cognitive behavioural therapy (CBT) and graded exercise therapy (GET) to NICE. The new guideline is expected

Enrolling: NIH Focus Group on PEM

January 7, 2019 11 Comments

Overview The NIH is currently looking for volunteers with ME/CFS to participate in a focus group that will be used to learn more about PEM in daily life as well as to hear about your experiences with Cardio Pulmonary Exercise Testing (CPET) if you have experienced it. They are particularly looking for people in the

Apply for Stanford Medicine X Conference as ePatient or Presenter – deadline Jan. 31st

January 4, 2019 No Comments

Stanford University hosts an annual academic conference, Medicine X, every September to bring together community stakeholders, innovators and leaders in health care to empower collaborative change. This year’s Medicine X | Change conference will be held at Stanford University in Palo Alto, California on Sept. 20 – 22, 2019. Stanford describes the conference as, “less

Author: #MEAction