As many of you know, #MEAction activists for myalgic encephalomyelitis (ME) met with the director of the National Institutes of Health (NIH), Dr. Francis Collins, on December 7 to discuss accelerating research in order to more rapidly provide diagnostics and treatments to people with ME. To read about the details of the meeting, click here.
NEED HELP? Support and Crisis Resources Living with ME can be extremely difficult. #MEAction strives to create spaces of support. Everyone at #MEAction cares deeply about the individuals in our community. We fight for your health in advocacy and scientific spaces, but we also want you to know that you are loved, supported, and valued. Joining
This holiday season, give the gift of support and love through a donation to #MEAction. Your donations go to growing the reach of ME so that more people know and want to support. Donations also go to our various initiatives including: educating physicians, inspiring new scientists to the field, connecting pwME and caregivers through social
Our community’s advocacy work end with a big finale with our meeting with the director of the U.S. National Institutes of Health (NIH)! Catch up on the latest global news from the past few months. U.S. NIH #MEAction representatives met with the National Institutes of Health (NIH) director, Dr. Francis Collins, and other key NIH leaders
As always, our community continues to amaze us with its tenacity, creativity, intellect, hard work and generosity. Enjoy a round-up of some of the community happenings these past few months where people with myalgic encephalomyelitis (ME) around the world continue to fight for recognition, treatment, care and dignity. Austria Austrian broadcast station @ATV aired a
Jenny Horner is another stalwart advocate in the myalgic encephalomyelitis (ME) community who inspires us to dig deeper and reach higher. She first got involved with #MEAction UK in an effort to protect children from the effects of being pushed to exercise, which has shown to cause harm in people with ME. Most recently, she
#MEAction UK and #MEAction Scotland are recruiting new volunteers to join our social media teams. We are looking for volunteers to create impactful content across our Twitter and Facebook pages, as well as moderators to enable our Facebook groups to be effective working spaces focussed on active campaigning and mobilising from the ground up. Communicating
As the year comes to a close and we look over all that we have accomplished, we know that we could not have done this without the amazing work of our #MEAction U.S. state and local advocacy groups. These groups are the foundation of our work as they build support, spread awareness, and advocate for
A study scheduled for our December research roundup entered the limelight yesterday due to an SMC campaign in the UK. The study that has everyone talking is a study at King’s College London called Persistent fatigue induced by interferon-alpha: a novel, inflammation-based, proxy model of Chronic Fatigue Syndrome and features some familiar faces, including Chalder. The
Thanks to another strong turnout from the ME/CFS community, 14 Senators and 28 Congressional Representatives joined together to sign this bipartisan letter to the U.S. Department of Health and Human Services (HHS) in support of people with ME/CFS. The bicameral letter was sponsored by Senator Ed Markey (MA) in the Senate and Congresswoman Anna
