#MEAction, Author at #MEAction Network

Meta-Analysis Shows Blunted Heart Rate Contributes to Activity Intolerance in People with ME

March 23, 2019 No Comments

The Workwell Foundation issued the press release below about its meta-analysis of 20 years of studies that shows “overwhelming evidence” of chronotropic incompetence in people with ME/CFS, which contributes to activity intolerance in people with myalgic encephalomyelitis (ME). A normal response to exercise is an increase in heart rate. Failure of the heart to keep pace with an

Our Community will Not Suffer Stigma and Distortion

March 23, 2019 No Comments

Last week was a difficult time for the ME community as we watched a few journalists deride and dismiss the medical concerns of an entire patient population: us, our friends, our families. Reuters is responsible for gaslighting millions of suffering people around the world. #MEAction has emailed a version of this letter to every

Increased Funding for ME Research and Education

March 22, 2019 No Comments

***UPDATE: THIS ACTION IS NOW OVER*** Congressmembers Zoe Lofgren and Anna Eshoo, are currently asking for support from their fellow House Members for TWO requests that can increase funding for ME! These requests would include: 1) Request $9.9 million for ME programs at the CDC (Labor-HHS committee) 2) Add ME to the Peer-Reviewed Medical Research

Fighting for Rigorous Science and Accurate Reporting

March 14, 2019 1 Comment

On March 13, Reuters published an article, “Special Report: Online activists are silencing us, scientists say“. Reuters used their platform to promote discredited, pseudoscientific treatments and to frame people with ME as violent activists. The article was also picked up in the New York Post, who re-published the content uncritically. #MEAction is urging the ME

Enrolling: NIH Intramural Study

March 12, 2019 No Comments

Overview The objective of this research study is to look in-depth at the clinical and biological characteristics of ME/CFS. Participants with ME/CFS are inpatients at the clinical center at NIH for approximately two weeks on their first visit and another two weeks if they return for the second round of the study. There will be

Denmark Parliament Holds Query on ME

March 11, 2019 2 Comments

#MEAction supports people with ME in Denmark today as the Danish Parliament discusses the treatment of people with myalgic encephalomyelitis (ME). On Tuesday, March 12th a query about the treatment of people with ME will take place in the Danish Parliament. The question being asked is: What initiatives does the government intend to launch for

Plan for #MillionsMissing Now! Read the Toolkit!

March 8, 2019 No Comments

#MillionsMissing 2019 is fast approaching, and now is the time to get started! Demonstrations calling for health equality for Myalgic Encephalomyelitis (ME) will take place around the globe throughout the week of May 5th – 12th, 2019. We are only two months away! How will you join the movement? Check out our toolkit and determine

Here’s What to Expect for ME Advocacy Day 2019

March 6, 2019 No Comments

Last day to register to attend Advocacy Day in Washington, DC on April 2-3rd! If you are wondering if attending Advocacy Day is for you, here is a document that breakdowns what those two days will look like. The document provides steps to take when planning for the trip and a more detailed schedule of

Announcing #MillionsMissing 2019! Join us!

February 26, 2019 4 Comments

Listen to the article: We are thrilled to announce #MillionsMissing 2019! This May, we will take to the streets – or demonstrate from our beds – to show the world we are here, we are the #MillionsMissing, we will continue to fight for our demands for people with myalgic encephalomyelitis (ME). We’ve made important

Proud Accessible Activism: The ME Debate Virtual Demonstration

February 1, 2019 No Comments

Throughout history, activism and campaigning have been a driving force for positive change across the world. From civil rights to LGBTQ rights and more. However much of this has been inaccessible to large swathes of the disability community. For the ME community – the #MillionsMissing – the nature of this illness and the stigma attached

Author: #MEAction