It has been a big week, with over 100 public and virtual events happening across the world! We are honored and grateful to be in this fight for health equality with you. We showed the world that we are the #MillionsMissing – that we will fight for the recognition, treatment, and compassion we deserve for
We asked you, the #MillionsMissing from ME to tell us your stories. We are grateful for all that you’ve shared with us and each other. We are proud to publish your words. We won’t give up the fight. Here is the collection of your stories from 2019. *We tried our best to include all of
Rat Queens, a show on the popular Twitch channel, HyperRPG, is hosting a fundraiser for #MEAction this Wednesday, May 8th at 7pm PST. Twitch is a live streaming platform and anyone can watch and participate from their homes! 100% of the proceeds will go to #MEAction. Rat Queens (based on the Image Comic Book Series by
Myalgic encephalomyelitis (ME) is a debilitating, chronic disease that steals so much from the person. We received heart felt stories from around the globe chronicling journeys with ME. This week we touched on parenting, aging, marginalization, and careers. Today we want to share more of your stories. While not all of these stories fit into
[pullquote align=”full” cite=”” link=”” color=”” class=”” size=””]I miss teaching. I miss making a difference.[/pullquote] Myalgic encephalomyelitis (ME) is a debilitating, chronic disease that steals so much from people’s lives. People with ME may struggle with their identity through the loss or great change in their careers. Below are stories of individuals who found their careers
Aging can be a challenging time for anyone but people with the debilitating, chronic disease of myalgic encephalomyelitis (ME) often find that their symptoms are dismissed as a “normal” part of aging, and so are left without the diagnosis, care and support that they need from their medical providers and community to manage and treat a
Myalgic encephalomyelitis (ME) is a debilitating, chronic disease that steals so much from the person. Parents with ME are missing precious days and years with their children due to the disease, and parents of children with ME are fighting to provide care for their sick children in a world where there is scarce medical knowledge, treatments
On Thursday 18th April, #MEAction UK held a conference call with organisers of #MillionsMissing event past and present from across the UK. There are already events planned for 2019 in all 12 UK regions, with over 25 events in the UK Claire from Southampton, Janet from Edinburgh, Carolyn from Sheffield and Denise from London were
Join the protest virtually during #MillionsMissing – May 5th to May 12th Use the hashtag: #MillionsMissing Start sharing photos of the demonstrations happening around the world the week of #MillionsMissing from May 5th to 12th! Share your story. Retweet away! Remember to share the fundraiser. Keep sharing stories by others. Prepare for the finale on
By Wilhelmina Jenkins When I became ill in 1983 with what is now called ME/CFS, my life as I knew it was abruptly destroyed. I dropped into a world of pain, exhaustion, and dozens of other baffling symptoms, most particularly the cognitive disruption that robbed me of the life in physics that I loved. After
