#MEAction, Author at #MEAction Network

U.S School Nurses, Teachers & Counselors can now take Continuing Education Course about Pediatric ME/CFS

August 16, 2019 No Comments

School nurses, counselors, social workers or teachers in any U.S. state can now earn earn 3.25 Continuing Education credits (CNE) for completing a course on pediatric myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). The course is titled, ““Why Can’t This Child Get to Class? Learn How ME/CFS Keeps Youth from Attending School.” The course features Dr, Peter Rowe,

Greater London Authority Unrest screenings to raise awareness of ME

August 16, 2019 No Comments

The Greater London Authority’s offices have held two Unrest screenings over the past few months to raise awareness of myalgic encephalomyelitis (ME). The screenings, held for staff, took place at Union Street and City Hall, and were part of ME Awareness Week and the #MillionsMissing campaign. Officers and staffers attended the two screenings, held in

Gigi Update: Lewisham Hospital Removes Gigi’s Pain Medication, Leaving Her in Rising Pain

August 13, 2019 No Comments

An update on Gigi’s situation: Gigi’s family are launching an urgent appeal to find lawyers to bring their daughter, 17, home from Children’s Ward in Lewisham Hospital, London. Her family is desperate to bring her home, but the hospital has withdrawn Gigi’s pain medication, leaving her in steadily rising pain and making the move impossible.

#MEAction Welcomes Michelle Pinedo to our Board of Directors

August 9, 2019 No Comments

Listen to the article: #MEAction is pleased to welcome Michelle Pinedo to our Board of Directors. Michelle brings over 20 years of senior level experience in leading non-profit organizations to higher degrees of efficiency and impact. Michelle has seen the devastation of this illness up-close and considers herself a strong ally in our fight for recognition

Today, We Honor and Remember those with Severe M.E.

August 8, 2019 2 Comments

Today, we honor the millions of people around the world living in darkened rooms where sound and light and touch are beyond reach, where eating, bathing and standing have become impossible. Our community is fighting every day to bring hope, health and justice to people with myalgic encephalomyelitis (ME), and, today, we take time to

Researchers, Clinicians and Patients: Submit a Manuscript on ME to WORK Journal

August 7, 2019 No Comments

Researchers, patients and clinicians are invited to submit a manuscript for consideration in a special issue of WORK: A Journal of Prevention, Assessment and Rehabilitation (IOS Press), which will focus exclusively on the area of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Submissions are due Sept. 13, 2019. Scope The focus of this special edition is to examine how

Help ME/CFS Research and Clinical Care Research Win the Frontiers Spotlight Award! Download and View the Research!

August 6, 2019 No Comments

A series of 24 papers on ME/CFS called “Advances in ME/CFS Research and Clinical Care,” published in 2018-2019 in the online (open access, peer-reviewed) journals Frontiers in Neurology and Frontiers in Pediatrics, is in the running to win a $100,000 prize! The prize money must be used to fund a scientific conference on the topic.

Support Severe ME Day: Join the Silence Challenge

August 6, 2019 No Comments

August 8th is Severe ME Day. It is a day of awareness raising for those suffering severe Myalgic Encephalomyelitis as well as a day of remembrance. August 8th was the birthday of Sophia Mirza, a 32 year-old woman who died of ME. One way you can participate and raise awareness for Severe ME Day is to

A petition cloaked in the respectability of research

August 5, 2019 No Comments

#MEAction UK has written a letter with regards to a survey that states it is to protect specialist CFS/ME services in the UK. We do not recommend people fill in this survey. It is written in such a way that it could be misused to support the existing treatment paradigm that harms people with ME.

#MEAction Volunteers-of-the-Month: MEpedia Stalwarts

August 2, 2019 No Comments

#MEAction is honored to announce our volunteers-of-the-month, Innie and Pyrrhus, who are extremely dedicated contributors to MEpedia, our wiki encyclopedia for the ME and CFS community. Powered by #MEAction, MEpedia is crowdsourcing a knowledge base on the history, science and medicine with the goal to create a literature review so accurate, comprehensive, and technical that it can serve as a

Author: #MEAction