The All-Party Parliamentary Group (APPG) on ME held its first meeting on March 3, where biomedical research was discussed. Twenty MPs attended or sent staff to hear about the urgent need for biomedical research, following its inaugural AGM in January. Chaired by Carol Monaghan MP, the meeting was the first in a series that will
The situation of COVID-19 is rapidly changing. We wanted to be optimistic that this situation would improve for the better, but even in the last 48 hours the situation has dramatically shifted. The WHO is officially classifying the virus a pandemic. COVID-19 is now affecting more than 127,000 people worldwide. We can’t in good conscience,
Exciting News for 2020! #MillionsMissing London is in Parliament Square on 13th May. London will play host to a major demonstration aimed at highlighting the plight of ME sufferers across the globe. London #Millions Missing is thrilled to announce that they are collaborating with the Florence Nightingale Museum in her bicentennial year, 200 years after
March 11 Update: After thoughtful deliberation, we have made the difficult but necessary decision to postpone our Medical Education event in London, originally due to take place on April 1 at the LSHTM. We know how much this means to the community, and we did not make this decision in haste. The health and safety
The Cranky Queer Guide to Chronic Illness and #MEAction are co-sponsoring a webinar on COVID-19 (Coronavirus) prep, this Saturday March 7th, at 1:00 Eastern Standard Time. The fear of the coronavirus is affecting many of our lives, but this webinar will focus on Lifesaving, practical tools and support for preparedness for people with chronic illnesses in the US,
We are so excited that the Postcards to Doctors Initiative sent more than 6,000 postcards to physicians across the United States! We’d like to take this opportunity to recognize one of #MEAction’s Postcards to Doctors amazing artists, Emily Lawton. After she was diagnosed with ME at the age of fifteen, Emily used the process of
#MEAction and the ME Association are both delighted that Carol Monaghan (MP for Glasgow North-West) has re-established a new All-Party Parliamentary Group (APPG) on ME. This is a parliamentary initiative for which the ME Association will be providing secretariat support. The purpose of the APPG on ME is to seek to improve health, social care, education
As publication of new ME guidelines are delayed, NICE once again refuse to take action to mitigate the harmful recommendations that still stand in the existing guideline. Join us as we send them a giant card and tweet them so that they see the damage their guidelines have caused. Read more below and take action.
#MEAction sat down for an interview to catch up with songwriter and ME activist Kaeley Pruitt-Hamm, who in 2017 inspired MEAction to launch a virtual art and music concert called BedFest to showcase the artistic talent of the ME community, and also to explore the experience of having ME through poetry, art and music. Kaeley
The Associated Press published a syndicated article last week profiling a study being done by the NIH on ME/CFS. The article describes well the severity of ME, and the immense challenges our community faces, including lack of treatments, difficulty getting a diagnosis, skeptical doctors and a lack of knowledge about the disease. While the AP
