#MEAction, Author at #MEAction Network

Washington Post Editorial Says Some COVID-19 Patients Will Develop ME

June 2, 2020 No Comments

The Washington Post published an editorial last Saturday about how researchers are warning that COVID-19 may lead to long-term, debilitating illnesses, like myalgic encephalomyelitis (ME), in some patients. The editorial was written by former Washington Post reporter, Brian Vastag, and #MEAction co-founder, Beth Mazur, both of whom have ME. Many people infected with COVID-19 are

Black Lives Matter.

June 2, 2020 1 Comment

George Floyd. Breonna Taylor. Ahmaud Arbery. Tony McDade. There is so much pain, suffering, grief, and anger across the United States and around the world. As healthcare activists and advocates, we have seen time and time again that Black individuals face discrimination not just in their doctors’ offices but in every aspect of their lives.

When POC Can’t Get a Diagnosis, Go Unseen

May 21, 2020 1 Comment

For decades, myalgic encephalomyelitis (ME) – also commonly called chronic fatigue syndrome – was erroneously portrayed as a white woman’s disease in the media. Black people were told they can’t get this disease, and went unseen and undiagnosed. Studies finally confirmed what the ME community already knew: the disease was targeting white, black and brown

#MillionsMissing 2020 was powerful (full report)!

May 19, 2020 No Comments

*We added an update below. Videos like the “I got a virus” video from #MEAction UK and #MEAction Scotland were viewed over 90k times on multiple platforms. Better than originally reported! Dear Friends, You are amazing. You made #MillionsMissing impactful, powerful, and moving. This virtual year no doubt had it’s challenges, but it was beautiful

#MillionsMissing Choir Sings

May 16, 2020 4 Comments

These singers, fighting everyday to live with the debilitating disease of Myalgic Encephalomyelitis, (ME) offer their love, support, and friendship to everyone experiencing hardships. We Are so grateful for everyone who participated! For #MillionsMissing, a global campaign for ME health equality they collectively chose “You’ve Got a Friend” by Carole King. Share, send love to

Citizen science highlights non-recovery in COVID-19 patients

May 15, 2020 No Comments

Recently, #MEAction received what may be the first, participant-led analysis of COVID-19, entitled What Does COVID-19 Recovery Actually Look Like? An Analysis of the Prolonged COVID-19 Symptoms Survey by Patient-Led Research Team. The Body Politic COVID-19 Support Group surveyed over 600 participants who had experienced/were experiencing COVID-19 symptoms for at least two weeks, revealing insights

Researchers Say COVID-19 Will Lead to Surge in Chronic Illness, ME Sufferers Speak Out.

May 10, 2020 1 Comment

Researchers Say COVID-19 Will Lead to Surge in Chronic Illness, ME Sufferers Speak Out. FOR IMMEDIATE RELEASE:Contact: Adriane Tillman [email protected] Some post-COVID patients are not recovering as expected, and researchers are predicting the pandemic will lead to a surge in long-term chronic illness, including an uptick in cases of myalgic encephalomyelitis (ME – also known as

#MillionsMissing: Artists & Storytellers

May 10, 2020 No Comments

Over the years, we’ve seen incredible pieces of art from people with ME. Many of these artworks move us, galvanize us, and let us into the inner world of the artist that we would otherwise never see. ME separates us from our lives and loved ones – from work, from parties, from basic errands like

Researchers Expect COVID-19 will Cause Surge of Chronic Illness, including ME

May 10, 2020 10 Comments

Since a new coronavirus emerged from Wuhan, China late in 2019, some 3.8 million cases and 265,000 deaths have been reported world-wide. Governments are focused on treating patients acutely sick with COVID-19, the disease caused by the new virus SARS-CoV-2, and slowing the spread of the virus. However, a second crisis of long-term disability is

It’s #MillionsMissing Week!

May 10, 2020 No Comments

It’s here. It’s #MillionsMissing week! Are you ready to gather allies, express your art, share your story, tune into some great performances, and celebrate our community? There is a lot to do, and you should only participate when and how you are able. Our numbers are mighty, so you are not in this alone. Together, we

Author: #MEAction