For decades, myalgic encephalomyelitis (ME) – also commonly called chronic fatigue syndrome – was erroneously portrayed as a white woman’s disease in the media. Black people were told they can’t get this disease, and went unseen and undiagnosed. Studies finally confirmed what the ME community already knew: the disease was targeting white, black and brown
*We added an update below. Videos like the “I got a virus” video from #MEAction UK and #MEAction Scotland were viewed over 90k times on multiple platforms. Better than originally reported! Dear Friends, You are amazing. You made #MillionsMissing impactful, powerful, and moving. This virtual year no doubt had it’s challenges, but it was beautiful
These singers, fighting everyday to live with the debilitating disease of Myalgic Encephalomyelitis, (ME) offer their love, support, and friendship to everyone experiencing hardships. We Are so grateful for everyone who participated! For #MillionsMissing, a global campaign for ME health equality they collectively chose “You’ve Got a Friend” by Carole King. Share, send love to
Recently, #MEAction received what may be the first, participant-led analysis of COVID-19, entitled What Does COVID-19 Recovery Actually Look Like? An Analysis of the Prolonged COVID-19 Symptoms Survey by Patient-Led Research Team. The Body Politic COVID-19 Support Group surveyed over 600 participants who had experienced/were experiencing COVID-19 symptoms for at least two weeks, revealing insights
Researchers Say COVID-19 Will Lead to Surge in Chronic Illness, ME Sufferers Speak Out. FOR IMMEDIATE RELEASE:Contact: Adriane Tillman [email protected] Some post-COVID patients are not recovering as expected, and researchers are predicting the pandemic will lead to a surge in long-term chronic illness, including an uptick in cases of myalgic encephalomyelitis (ME – also known as
Over the years, we’ve seen incredible pieces of art from people with ME. Many of these artworks move us, galvanize us, and let us into the inner world of the artist that we would otherwise never see. ME separates us from our lives and loved ones – from work, from parties, from basic errands like
Since a new coronavirus emerged from Wuhan, China late in 2019, some 3.8 million cases and 265,000 deaths have been reported world-wide. Governments are focused on treating patients acutely sick with COVID-19, the disease caused by the new virus SARS-CoV-2, and slowing the spread of the virus. However, a second crisis of long-term disability is
It’s here. It’s #MillionsMissing week! Are you ready to gather allies, express your art, share your story, tune into some great performances, and celebrate our community? There is a lot to do, and you should only participate when and how you are able. Our numbers are mighty, so you are not in this alone. Together, we
Over the last many months, social media platforms like Twitter, Facebook, and YouTube have been flooded with disinformation about COVID-19. We wanted to make you aware of the problem, equip you with tools for how to recognize and respond to disinformation, and enlist your help keeping our community safe. According to numerous reports, much of this disinformation comes from organized
FOR IMMEDIATE RELEASE Contact InfoLaurie [email protected] A new viral video claiming to be an excerpt from a forthcoming documentary, Plandemic, is the latest in a growing number of Covid-19 disinformation efforts. In it and other videos, discredited virus researcher, Dr. Judy Mikovits, claims among other things that Covid-19 is a manmade virus that cannot be
