It was brilliant to find people who not only understood life with ME but were fighting to make it better. I soon realised there was a lot of work happening all year round, far beyond #MillionsMissing, and I’ve been helping where I can ever since.
Many thanks to folks at Stanford University for screening Unrest twice this month with #MEAction to educate health care professionals and medical students.
“The Scottish Government has responded to our petition with a range of actions; if these are seen through, I am hopeful of change in Scotland.”
I want to raise awareness and educate as many people as possible. There is a real lack of understanding for ME generally as well as within the medical world.
#MEAction State Chapters have been busy this year working to expand awareness, build support for House Bill H.R. 7057, and contribute to the Stop. Rest. and Pace. campaign, and provide much needed support to their communities during this unpredictable time. We are excited to share what they have been working on and remind those reading
You can steer #MEAction UK’s response to the draft ME/CFS guideline consultation. Join a community call, respond to our social media polls, volunteer to read the evidence reviews and more!
At age 16 I got a virus. Back then I did the right thing: Stop. Rest. Pace. I recovered. At age 19 I got a virus. My GP told me not to stop. Not to rest. Not to pace. 8 years on I have not recovered.
I look forward to our weekly office hour video call as this can be my only interaction with others outside of my family. It’s also the only meeting I’ve done where it’s still ok if you’re in your bed!
#MEAction UK will continue to collaborate where we can be more effective together. We believe that each ME charity and patient organisation in the UK plays a vital role in working towards common goals.
KRISTINE NILSEN OMA Kristine Nilsen Oma is a dancer and choreographer living in Norway. She has ME, and though it has been difficult, she has found innovative ways to continue to perform her art. Now that the world understands creating art on Zoom or Youtube Live in ways that they did not in the
