#MEAction, Author at #MEAction Network

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#MEAction Launches a SURVEY for People with ME/CFS and Other Chronic Diseases

May 25, 2021 1 Comment

The Director of Scientific & Medical Outreach at #MEAction, Jaime Seltzer, has partnered with Physician Scientist and Associate Professor of Epidemiology at Columbia University Mailman School of Public Health, Dr. Mady Hornig, to conduct a massive survey aimed at providing clinicians and researchers with key data that could assist in generating better care for and

Global media tells the story of the #Millionsmissing

May 19, 2021 No Comments

We are thrilled to see the press tell our story of the #MillionsMissing this year, and the #MillionsMore “long haulers” expected to develop ME/CFS following a COVID-19 infection. In Pittsburgh, a mother of four told her story in the Tribune-Review about her 25-year journey of never recovering after contracting EBV, the virus that causes Mono.

#MillionsMissing 2021 Was Inspiring! Watch the full Videos Here

May 18, 2021 No Comments

#YouAreNotAlone now or ever. We are with you.

#MEAction Sends Press Release About #MillionsMissing

May 10, 2021 No Comments

#MEAction sent out a press release last week to alert media to the #MillionsMore developing ME following COVID-19. We invited 651 journalists in the U.S and 552 journalists in the U.K. to join our #MillionsMissing event this Wednesday, May 12th. Before COVID-19 long haulers there were the #MillionsMissing… Read the US Press Release Read the

Continuing pressure on NHS to vaccinate people with ME in light of survey results

May 5, 2021 1 Comment

In light of this new evidence of exacerbation of ME from Covid-19, #MEAction UK have again written to Matt Hancock and Professor Stephen Powis to make them aware of the risk to people with ME in not being able to access the Covid-19 vaccine as a priority.

Covid-19 has worsened our ME, report survey respondents

April 29, 2021 8 Comments

Read the first findings from the survey #MEAction UK and #MEAction Scotland are conducting with Action for ME to gather evidence of the impact of Covid-19 on people with ME. Preliminary Report The aim of the survey is to provide data that can be used, along with personal stories, to help our campaign to make

ME/CFS Clinician Coalition Releases Recommendations for Tests & Treatments

April 19, 2021 No Comments

We are thrilled to see that the ME/CFS Clinician Coalition has released recommendations for medical providers on specific tests and treatments to use for caring for people with ME/CFS.

TAKE ACTION TO GET THE PRESS WE DESERVE

April 16, 2021 1 Comment

Over the past year #MEAction has been focusing on reaching out to the national press to make sure journalists and medical professionals are educated about ME and can provide the correct context when writing articles about long COVID and long haulers. Our efforts have paid off and we continue to receive coverage and new opportunities

A Letter from Jennifer Brea: Meet Our New Executive Director!

April 14, 2021 1 Comment

Last November, I announced that I was stepping down as Executive Director to focus on my health and well-being. Since then, our entire Board of Directors have led a wide search for the right person to lead #MEAction into the future.

Author: #MEAction