Author: #MEAction

2021 MillionsMissing announcement for the week of May 12th

Get ready for #MillionsMissing

We are gearing up for #MillionsMissing 2021! This year will be a week long event, from May 9 to 15, of action and activities to strengthen our community, and fight for recognition, research and medical education for myalgic encephalomyelitis (ME). Check out our website for the #MillionsMissing timeline of events, grab your t-shirt, and plan a local event!  We

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photos of 3 red shirts front and back each with a different #MillionsMissing theme

Get ready for #MILLIONSMISSING 2021 – Purchase your t-shirt

We are excited to announce that #MillionsMissing t-shirts are now available for purchase along with other items in our online stores!  Shop U.S. Shop UK Shop AUS This is our 6th anniversary of #MillionsMissing to raise awareness and fight for recognition, education and research for people living with myalgic encephalomyelitis (ME or ME/CFS).  Millions are

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Headshots of panel with wording to the side about date and time.

Press Telebriefing: long COVID & ME

When: Thursday, March 25, 12 p.m. PT / 3 p.m. ET  Contact: Adriane Tillman, #MEAction, [email protected]  MEDIA Advisory: A Panel of Experts to Explain How Long COVID Intersects with ME/CFS    On March 25, #MEAction will host a telepresser featuring a panel of experts who are uniquely positioned to speak to how long COVID is

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Investigating the impact of Covid-19 on ME – Survey

Please help #MEAction UK and #MEAction Scotland by taking part in this survey to find out the effect that Covid-19 has on people with ME. Take the survey We are working in collaboration with Action for ME to gather evidence on the impact of Covid-19 on our community. We have heard many stories from people

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Solve M.E.’s Advocacy Week and the Long Covid Alliance

Solve M.E. Advocacy week will be from Sunday, April 18th, 2021 to Saturday, April 24th, 2021. As a core member of the Long Covid Alliance and a partner on Advocacy Day, #MEAction would like to encourage you to participate in this important event if you are able. The keystone event is Advocacy Day, on Tuesday,

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Collage of the 5 winning postcards with Join our 2021 campaign written on the side

Postcards to Doctors Continues – Sponsor or Participate!

PLEASE NOTE: The Unrest CME has now expired. If you have postcards remaining, please direct your providers to this CME instead! Postcards to Doctors is going strong! Postcards to Doctors, which we launched in 2019, is a medical education campaign in the US that focuses on getting medical professionals to learn more about ME. Our aim is to

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I #ChooseToChallenge gender bias in medicine and medical research.

#MEAction Celebrates International Women’s Day

Today is International Women’s Day!  #MEAction is joining in the IWD #ChooseToChallenge theme to challenge gender bias in medicine and medical research.  You can participate by creating and sharing your own #ChooseToChallenge image, share one of the ones we created for you, and reading /watching /sharing one or all of the resources we compiled for

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NHS England omits advice to apply clinical judgement re vaccine

It has come to light that a letter from NHS England and NHS Improvement to all vaccination centres and GPs in the UK has omitted advice that health professionals can and should apply their clinical judgement when placing people in group 6. Vaccination of people with underlying health conditions that put them at risk of

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Waiting for Superman Book on table

Waiting for Superman – UK Book Giveaway and Review

Do you want to win a free copy of Waiting for Superman? We have three copies to give away to people in the UK!  To enter, all you have to do is follow #MEAction UK on Instagram, like and comment on this post. The deadline is 9am (GMT) Monday 8th March! Win a copy! Thank

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