#MEAction, Author at #MEAction Network

Register for the IACFS/ME Conference

August 3, 2021 No Comments

Join IACFS/ME, the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis and people with ME, supporters, clinicians, and researchers for the 2021 IACFS/ME Virtual Conference, held August 19-21, 2021. Attendees will have access to three days of virtual workshops, lectures, and updates on recent developments in ME/CFS research. Some of the conference events include: “Orthostatic Intolerance

She Was a Specialty Food Shop Owner Before She got Diagnosed. Now She’s Writing a Cookbook for Others with ME.

July 30, 2021 38 Comments

Join #MEAction as we chat with Rachel Riggs to discuss her forthcoming cookbook, Clean Eating Foodist, whose recipes are designed for food-sensitive people with ME such as herself.

Severe ME Artists Project — Gallery

July 29, 2021 11 Comments

A collection of works by artists with severe ME.

Connecting Black People with ME and/or long Covid in the UK

July 16, 2021 No Comments

Darren Randon, a poet, qualified teacher, community builder, facilitator, host and co-founder of Well Versed Ink from Thornton Heath, is launching a new group aimed at supporting Black and Black-mixed people with ME and/or long Covid in the UK. The group plans to create a safe space to share experiences and create community with the

#MEAction CA—Article & Interview Published in Medical Board of CA’s Newsletter

July 15, 2021 No Comments

#MEAction CA’s advocacy work resulted in getting an article & interview published in Medical Board of CA’s newsletter!

Severe ME Artists Project

July 12, 2021 11 Comments

#MEAction is excited to announce our Severe ME Artists Project which will feature work from those within the severe ME community in honor of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase their artwork (whether it be writing, photography, drawing, singing, or any other medium that illustrates their talents) with multiple ways to participate based on a person’s energy levels.

The #MEAction Community Making Waves in June!

June 21, 2021 No Comments

There is so much going on in our wonderful community that we wanted to make sure you did not miss out on the latest successes, events, and updates! Take a look at #MEAction’s community round-up below.

#MEAction Hosts an Artist’s Salon During #MillionsMissing

June 17, 2021 No Comments

Activism comes in many forms, and #MEAction recognizes the significant role that art can play, not only as healing and cathartic expression, but as a powerful tool to move hearts and drive change. The ME community is host to talented artists all over the world, and we wanted to celebrate their gifts by hosting a

#MEAction Discussions with REGAIN Trial Clinicians Led to Staff Training on PEM

June 11, 2021 No Comments

Earlier in 2021, concerns were raised by people with ME about the REGAIN clinical trial and whether there was a risk to people suffering from post-viral symptoms, particularly post-exertional malaise. The REGAIN study aims to find out which of two treatments is better for helping people recover after being in hospital with Covid 19 –

Celebrating #MEAction's State Chapter Successes

Celebrating #MEAction’s State Chapter’s wins

June 1, 2021 No Comments

#MEAction State Chapters have been busy both locally and federally to continue the fight for ME & Long COVID recognition and awareness. While the road is long and often times filled with delays and detours, #MEAction State Chapters continue to drive forward and make inroads. #MEAction is beyond grateful and very thankful for the work

Author: #MEAction