Darren Randon, a poet, qualified teacher, community builder, facilitator, host and co-founder of Well Versed Ink from Thornton Heath, is launching a new group aimed at supporting Black and Black-mixed people with ME and/or long Covid in the UK. The group plans to create a safe space to share experiences and create community with the
#MEAction CA’s advocacy work resulted in getting an article & interview published in Medical Board of CA’s newsletter!
#MEAction is excited to announce our Severe ME Artists Project which will feature work from those within the severe ME community in honor of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase their artwork (whether it be writing, photography, drawing, singing, or any other medium that illustrates their talents) with multiple ways to participate based on a person’s energy levels.
There is so much going on in our wonderful community that we wanted to make sure you did not miss out on the latest successes, events, and updates! Take a look at #MEAction’s community round-up below.
Activism comes in many forms, and #MEAction recognizes the significant role that art can play, not only as healing and cathartic expression, but as a powerful tool to move hearts and drive change. The ME community is host to talented artists all over the world, and we wanted to celebrate their gifts by hosting a
Earlier in 2021, concerns were raised by people with ME about the REGAIN clinical trial and whether there was a risk to people suffering from post-viral symptoms, particularly post-exertional malaise. The REGAIN study aims to find out which of two treatments is better for helping people recover after being in hospital with Covid 19 –
#MEAction State Chapters have been busy both locally and federally to continue the fight for ME & Long COVID recognition and awareness. While the road is long and often times filled with delays and detours, #MEAction State Chapters continue to drive forward and make inroads. #MEAction is beyond grateful and very thankful for the work
The Director of Scientific & Medical Outreach at #MEAction, Jaime Seltzer, has partnered with Physician Scientist and Associate Professor of Epidemiology at Columbia University Mailman School of Public Health, Dr. Mady Hornig, to conduct a massive survey aimed at providing clinicians and researchers with key data that could assist in generating better care for and
We are thrilled to see the press tell our story of the #MillionsMissing this year, and the #MillionsMore “long haulers” expected to develop ME/CFS following a COVID-19 infection. In Pittsburgh, a mother of four told her story in the Tribune-Review about her 25-year journey of never recovering after contracting EBV, the virus that causes Mono.
#YouAreNotAlone now or ever. We are with you.
