#MEAction, Author at #MEAction Network

Takeaways from The ME Association's CBT, GET, and Pacing Report

May 29, 2015 2 Comments

ME/CFS Illness Management Survey Results “No Decisions about me without me” The ME Association just released the results of a patient survey taken in 2012 that covered management and self-management courses commonly offered to patients with Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, or Post-viral Fatigue Syndrome. The report (available in full on the ME Association website)

Q&A with the OMF Severely Ill Big Data Study

May 25, 2015 No Comments

The Open Medicine Foundation’s big data study on severely ill patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome is an exciting new project designed to uncover biomarkers by studying the sickest of the sick. Want to learn more? Your pressing questions about the study are answered below. How long will it take to do the study?

New hope for those with Chronic Fatigue Syndrome

May 23, 2015 No Comments

Could new cytokine research be paving the way to a diagnostic test for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome? Excerpted from Columbia Magazine – Spring issue: As many as four million Americans are thought to suffer from chronic fatigue syndrome, a disease characterized by symptoms that include persistent lethargy, headaches, muscle pain, mental fogginess, and sleep problems

Recapping ME/CFS Awareness Day – #May12BlogBomb

May 22, 2015 No Comments

May 12th is Awareness Day for ME, Fibromyalgia, Lyme Disease, Chronic Fatigue Syndrome and Multiple Chemical Sensitivity. Every year bloggers use this opportunity to express their views and to raise the profile of these often misunderstood and maligned conditions. A call was put out to bloggers to participate in a #May12BlogBomb. The loose theme this

ME Awareness – Tom's Appeal

May 17, 2015 No Comments

My brother has made a video to promote his participation in the Edinburgh marathon (31st May) in aid of ME Research UK. Although partly a fundraising initiative, the video also delivers a powerful message and can be used as a tool for raising awareness. It has been viewed over 4,000 times in one week, and so far raised roughly the same amount in £. Please share as widely as possible. https://www.youtube.com/watch?v=dgovI7Q273g (or go to YouTube and search for ‘ME awareness – Tom’s appeal”

Take The Chilli M.E. Challenge

May 16, 2015 1 Comment

Take The Chilli M.E. Challenge. The Chilli M.E. Challenge is an advocacy initiative started by four girls who met on Facebook and decided that something had to be done to spread awareness to those that don’t have ME and also to raise much needed funds for biomedical research for Myalgic encephalomyelitis (ME)/ Chronic Fatigue Syndrome

Artists with ME/CFS/FM/SEID Online Juried Art Exhibition

May 16, 2015 1 Comment

www.meagain.org

Recapping ME Awareness Day – May 12th, 2015

May 15, 2015 No Comments

While ME awareness day does not garner the attention that other illness do, patients and advocates are working hard to bring light to the issues. EmpowerHer summarizes the inspiring actions and events that took place this year: Monuments were lit up around the world including Peace Bridge in the United States, and Langevan Bridge, Niagara Falls, CN

Help DePaul Researchers Learn About Post-Exertional Malaise

May 14, 2015 No Comments

We are conducting a research study because we are trying to learn more about what occurs before and during post-exertional malaise for individuals with Myalgic encephalomyelitis (ME) or chronic fatigue syndrome (CFS), as well as how these individuals define the term post-exertional malaise. We are asking you to be in the research because you have a diagnosis of ME or CFS, speak English, and are 18 years of age or older. If you agree to be in this study, you will be asked to complete a survey. The survey will include questions about your post-exertional malaise experiences related to your ME or CFS. We will also collect some personal and demographic information about you, such as age, gender, race, marital status, income, level of schooling, disability information, and work status. The full survey can be completed online. If there is a question you do not want to answer, you may skip it.

New Potential Cause of ME Found

May 14, 2015 No Comments

New potential cause of ME found. Research found that Important signalling mechanisms are disrupted with receptors in the brain, gut, cardiovascular and immune systems. Research findings will be presented at the end of May 2015. Read more…

Author: #MEAction