#MEAction, Author at #MEAction Network

Help DePaul Researchers Learn About Post-Exertional Malaise

May 14, 2015 No Comments

We are conducting a research study because we are trying to learn more about what occurs before and during post-exertional malaise for individuals with Myalgic encephalomyelitis (ME) or chronic fatigue syndrome (CFS), as well as how these individuals define the term post-exertional malaise. We are asking you to be in the research because you have a diagnosis of ME or CFS, speak English, and are 18 years of age or older. If you agree to be in this study, you will be asked to complete a survey. The survey will include questions about your post-exertional malaise experiences related to your ME or CFS. We will also collect some personal and demographic information about you, such as age, gender, race, marital status, income, level of schooling, disability information, and work status. The full survey can be completed online. If there is a question you do not want to answer, you may skip it.

New Potential Cause of ME Found

May 14, 2015 No Comments

New potential cause of ME found. Research found that Important signalling mechanisms are disrupted with receptors in the brain, gut, cardiovascular and immune systems. Research findings will be presented at the end of May 2015. Read more…

Crowd funding for The OMF ME/CFS Severely Ill Big Data Study

May 13, 2015 1 Comment

As part of our OMF End ME/CFS Project, this study will conduct a comprehensive, “Big Data,” analysis on severely ill ME/CFS patients with the goal of finding sensitive and distinctive molecular biomarker(s). Very little research has been done in the bedbound. severely ill patients because they are hard to reach. By looking at the simple

ME Awareness at the Brighton Wheel and Brighton Sea Life Center

May 13, 2015 No Comments

The Brighton Wheel and the Brighton Sea Life Centre were lit up blue last night in support of ME Awareness. A group of ME Mums and Dad’s held posters from Action for ME for photographs that will be published along with an article on ME in the Argus newspaper. The photos were also circulated

More NIH Funding Needed for ME/CFS Research!

May 13, 2015 No Comments

According to the recent Institute of Medicine report, up to 2.5 million Americans have chronic fatigue syndrome (ME/CFS). Patients with ME/CFS are more functionally impaired than those with other disabling illnesses, including congestive heart failure, multiple sclerosis, and end-stage renal disease. The NIH funds ME/CFS at $5 million per year, and that amount is estimated by

The $10 Challenge For Columbia CII ME/CFS Research

May 10, 2015 No Comments

The Microbe Discovery Project began as a patient-driven crowdfund to raise funds for world-class researchers Dr Ian Lipkin and Dr Mady Hornig at Columbia University’s Center for Infection and Immunity (CII), New York. Research into ME/Chronic Fatigue Syndrome is sorely needed and there is a paucity of research into the illness. Patients raised a whopping

Emerge Australia Health and Welfare Survey

April 25, 2015 No Comments

Federation University, in collaboration with Emerge Australia, would like to invite you to participate in a health and welfare study of people with ME/CFS.

Help DePaul researchers learn more about ME related mortality

April 19, 2015 No Comments

DePaul University’s Center for Community Research (under the leadership of Dr. Leonard Jason) is currently recruiting respondents for a study on myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) mortality.

Spain hologram protest

April 15, 2015 1 Comment

Activists in Spain, after a new gag law curtailed the freedom to protest in front of Congress or parliament buildings, staged what may be the world’s first hologram protest. Holographic projection opens up a whole new world of possibilities for how to bring to the outside world the images, voices, and stories of patients who are to ill to physically engage

Fund Mike's North Pole Marathon

April 10, 2015 No Comments

Running a 26.2 mile marathon at the north pole for IiME This is the challenge of a lifetime and it is the result of my daughter having ME since September 2008. I have seen firsthand how damaging ME can be to a person’s life, their prospects and their family. Support Mike’s marathon and raise

Author: #MEAction