Long COVID Awareness Day
March 14, 2025
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#MEAction has been fighting alongside the Long COVID community since 2020 – we know that our futures are inextricably linked.
Author: #MEAction
Pillow Crafters Showcase: Healing Themes—The Wildflower Process
March 6, 2025
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#MEAction invites you to experience Pillow Crafters Showcase: Healing Themes—The Wildflower Process on Wednesday, March 26th, 2025 at 11am PT/2pm ET/6pm GMT, a showcase of resilience, creativity, and the many ways we reclaim our identities after an ME/CFS diagnosis. RSVP Here Through the symbolism of a wildflower, participants have explored themes such as grief, transformation,
Press Release: Advocates Urge Administration to Reinstate Long COVID Advisory Committee
March 6, 2025
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Press Contact: #MEAction: press@meaction.net Patient & Expert Voices Must Be Heard: Advocates Urge Administration to Reinstate Long COVID Advisory Committee #MEAction and the Patient-Led Research Collaborative – leading organizations advocating for people with Long
#MEAction Celebrates Powerful Women
March 5, 2025
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#MEAction acknowledges and celebrates the amazing women in our community.
Town Hall Summary
February 28, 2025
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Tuesday’s Town Hall was powerful. It was wonderful to have such thoughtful speakers gather to consider the policies that will affect the disability and chronic illness communities the most. This is the time to join together and make a difference. #MEAction will be with you every step of the way! We’d love for you to
#MEAction’s Medical Flashcards Featured by CDC!
February 20, 2025
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#MEAction is excited to announce that the Anki Flashcards we created about ME/CFS and infection-associated diseases have been recommended by CDC on its new ME/CFS page for medical students! Anki flashcards are a digital learning tool used by medical students to retain medical knowledge. The deck was created for our #TeachMETreatME campaign with #MEAction Georgia
Press Release: Cochrane Library Faces Backlash Over ME/CFS Review Cancellation
January 31, 2025
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January 24, 2025 – Cochrane Library has made the shocking decision to abandon an independent analysis of its 2019 review of exercise therapy for myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) – and has altered the date of publication to make the review appear current when, in fact, its sources are 10 years old or
A Heart-filled Very Modified Movement Class on 2/14
January 30, 2025
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♥️ Join #MEAction for a heart-filled, very modified movement class of the year on Friday, February 14th at 11am PST/2pm EST/7pm GMT. ♥️This class has been crafted specifically for people with ME. This 30 minute class will be hosted virtually. We are thrilled to partner with Shannon Williams-Bramburger of Nourish Therapeutic Yoga, who has been
Cochrane Collaboration Cancels Independent Analysis of Exercise Therapy Review for ME/CFS
January 24, 2025
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#MEAction is raising the alarm about Cochrane Collaboration’s sudden decision to abandon an independent analysis of the 2019 review of exercise therapy for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Cochrane has also altered the date of publication to 2024 to make the review appear current when, in fact, its sources are all 10 years old or
The Year Ahead
January 23, 2025
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As we embark on the new year, we are excited to share updates about #MEAction’s advocacy projects and community programs with you! While we focus on advancing support, research, and treatments for people with ME, we’re also closely monitoring changes to public health systems under the incoming administration, and will pivot as needed to fight