On May 12th, #MEAction and the #MillionsMissing are sending out an SOS to Congress to Save our Support Systems. Save our Science. Save Our Society. HERE’S WHY: Healthcare, research funding and accessibility were already incredibly fragile for people with myalgic encephalomyelitis (ME), Long Covid and the disability communities. Now, we are seeing constant threats to
#MEAction is excited to announce we are partnering with the Writers Guild Initiative (WGI) again to offer creative writing workshops for people with ME and Long COVID**. WGI has graciously donated their time to offer these writer workshops through personal mentorship with the writers of the #MEAction community! The workshops consist of three sessions during
Stuart Murdoch, from the band Belle and Sabastian, will be interviewed by #MEAction Minnesota’s State Chapter Leader, Terri L Wilder, about his recently released novel, Nobody’s Empire, on Saturday, April 19th at 1pm ET/6pm BST. We hope you join us for this virtual event to learn more about his debut novel. Tickets are available for
For #MillionsMissing 2024, #MEAction is sending out an SOS.
The White House is terminating funding for NIH RECOVER grants awarded in 2022 and 2023 for Long COVID.
We want to provide you with an update about where we stand with the federal administration massively cutting Medicaid and threatening to get rid of Telehealth extensions. We are so grateful for the actions that you have taken with us to fight to protect Medicaid and Telehealth but we still have a long road ahead
Ian Simon, the head of the Long COVID Office at Department of Health and Human Services (HHS), released the following statement to coworkers: Dear Colleagues, We are writing to let you know that the Office of Long COVID Research and Practice will be closing as part of the administration’s reorganization coming this week. We are
We are writing to you with an urgent call to action. The Trump administration has cut funding for the Center for Solutions for ME/CFS at Columbia University as part of a broader $400 million funding termination at the university. This devastating decision includes the loss of NIH funding for one of the nation’s few Collaborative Research
#MEAction Georgia volunteer, Cory Anderson-Sweeney, uses her Baby Deer Bakery to spread awareness about ME and her Cookie of the Month Club to help raise funds for #MEAction. We were inspired by her journey and we hope you will enjoy the scrumptious look into her story in her own words. Here’s the delicious morsel: When
#MEAction has been fighting alongside the Long COVID community since 2020 – we know that our futures are inextricably linked.
