Ben HsuBorger, Author at #MEAction Network

A woman in a red hoodie pumps her fists in the air before a crowd of fellow rally-goers holding their signs of protest in front of them.

Why I Joined a Stand Up for Science Rally

March 12, 2025 No Comments

Why I joined more than 1,000 protesters at a Stand Up for Science rally in Madison, WI to fight for the funding of critical science.

CANARY CORPS – New Grassroots Program Coming Soon

November 6, 2023 No Comments

I’ve got exciting news to share! In early 2024, #MEAction will launch a new grassroots, peer-run program in the United States to help people with ME, Long COVID, and other infection-associated chronic illnesses find and access local services and support for people with disabilities. This will be an innovative and radical program that is run

”Bed activism” at the Washington Monument & A Politics of Care

June 30, 2023 No Comments

I’ve been involved in planning many #MillionsMissing actions during my time with #MEAction, but for me, protesting at the Washington Monument this past May 12th was a different—even surreal—experience. The installation of cots was so large that I could see people coming across the mall to see what it was. I would tell them that

Young woman sits on floor at edge of bed looking distraught with head in hand

ME & Long COVID patients need telemedicine prescribing flexibility

March 31, 2023 3 Comments

DEA should amend its proposed rule to ensure access to care

NIH Must Not Overlook Evidence of Exercise Harm

March 22, 2023 4 Comments

Long COVID Exercise study must address safety, efficacy concerns.

Text “Exercise can worsen Long Covid.” A person is falling through the air; their face is blurred and legs and arms are reaching upward. The background is a cracked glass screen.

MEAction questions Long COVID exercise study’s safety, efficacy

March 6, 2023 2 Comments

Calls for immediate public release of RECOVER’s clinical trial design

ME/CFS Neglect Kills. Act Up. Fight Back. #MEAction. Red tinted image with protestors laying on grass in front of White House with grave stones. Protestor raises one clenched fist above head.

My Truth, Our Trauma, & A Call to Keep Fighting

December 7, 2022 No Comments

Reflections from the World AIDS Day White House Protest

Background photo of White House and lawn between two trees, tinted red. Bold text: "Fund Pandemic Plans" Below in small text: "World AIDS Day 2022"

Take Action Virtually with our White House Protest

November 30, 2022 No Comments

AIDS, ME/CFS & Long COVID activists demand Biden, Congress fund pandemic plans

Large bold text, on an angle reads: Join us for World AIDS Day to End Pandemic Nightmares. Dec 1 12 PM EST outside the White House and online everywhere. Below, a person of color in a face mask with a sign reading "HIV, Long COVID and ME/CFS, COVID-19, Ebola, cholera, monkeypox, TB, and more." Next to a white person in a face mask holding a sign reading "End COVID Everywhere." Below are the logos of organizational co-sponsors: Health GAP, Universities for Access to Essential Medicines, ACT UP New York, ACT UP Philadelphia, Long COVID Justice, Black and Latinx Community Control of Health, MEAction, The Peoples Vaccine, CPD Action, Spaces in Action, Strategies for High Impact, Access is Global.

On World AIDS Day, We’re Taking Action at the White House

November 23, 2022 No Comments

White House Must Confront Global Health Nightmare of Colliding Pandemics

Text across top of image reads: "Experts in infection associated chronic illness" with "WE WANT YOU!" bolded below it. Hand with finger pointed out at viewer. "Apply now" buttons to the left and right with mouse cursor clicking on them.

Infection-associated chronic disease experts needed at ARPA-H

November 22, 2022 1 Comment

Congress launched ARPA-H (the Advanced Research Projects Agency for Health) this past March to focus on high-risk, high-reward research projects with the goal to solve intractable health problems. As ARPA-H is in the process of hiring its first cohort of program managers, #MEAction and a coalition of chronic disease advocacy groups have published an open

Author: Ben HsuBorger