#MEAction’s BOLD Press Strategy Leads to BIG Press Payoff!
November 3, 2022
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Taking BOLD ACTION with our press outreach has led to national media writing about ME.
Author: Adriane Tillman
#MillionsMissing Press Hits are Rolling In!
September 20, 2022
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The press hits are rolling in! The media showed up in a big way yesterday to cover our #MillionsMissing protest in front of the White House. One day after President Biden declared the “pandemic is over,” our community was at the gates of the White House to send Biden a message that a pandemic of chronic
Coming to Terms with My Disability
July 23, 2020
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My husband often pushes me home in my son’s stroller because I have enough energy to get to the playground but not enough to get home. There are so many types of disabilities and so many ways to address them, and the disability rights’ activists of the 70s taught the world – and myself –
ME/CFS Protesters Interrupt House Appropriations Hearing
March 4, 2020
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ME/CFS Protesters Interrupt House Appropriations Hearing FOR IMMEDIATE RELEASE:Contact: Adriane Tillman [email protected] Today, #MEAction protesters wearing red #millionsmissing t-shirts interrupted NIH Director Dr. Francis Collins’s opening statement to the House Appropriations LHHS Subcommittee hearing to demand the NIH take urgent, comprehensive action to stem the crisis of ME/CFS that has been growing unchecked for more than three decades.
Marcie Zinn was a Force for ME
January 15, 2020
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We are deeply saddened by the sudden death of Marcie Zinn, PhD, who was a dedicated researcher, advocate and person with myalgic encephalomyelitis (ME). Marcie died of sudden heart failure on Dec. 28, 2019. Marcie and her husband, Mark, founded the Neurocognitive Research Institute (NCRI), a non-profit that specializes in 3D-mapping of the brain to
Why U.S. ME/CFS Clinician Coalition Uses IOM Criteria to Educate Clinicians
December 18, 2019
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A year and a half ago in March of 2018, many of the leading U.S. ME/CFS clinicians came together for a summit at the Bateman Horne Center to discuss diagnostic and treatment methods for ME/CFS. There were three major goals for the summit, including to summarize and publish on key diagnostic and treatment methods; distill
#MEAction Volunteer-of-the-Month: She’s been Fighting for Change for Four Decades
September 6, 2019
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This month, #MEAction is honored to nominate Wilhelmina Jenkins as our Volunteer-of-the-Month. Wilhelmina has been fighting for recognition and progress for myalgic encephalomyelitis (ME) for nearly four decades since she suddenly became ill in 1983. She brings a wealth of knowledge, wisdom and fortitude to our community, and we are incredibly grateful for her perseverance
#MEAction Welcomes our Social Media Ambassador from South Africa
August 20, 2019
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We are excited to announce our newest Social Media Ambassador, Clarinda Viviers, from South Africa! A social media ambassador is a volunteer who is knowledgeable, an enthusiastic supporter of the ME community and #MEAction, and has a strong social media presence. Each ambassador amplifies #MEAction’s social media efforts and share news with #MEAction’s social media
Netflix’s “Afflicted” Cast Sues for Defamation
August 14, 2019
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Four cast members of the Netflix series, Afflicted, have filed a lawsuit against Netflix and Doc Shop producers for defamation for portraying them as ‘hypochondriacs and/or malingerers.” The lawsuit indicates that the Doc Shop producers lied to the Afflicted participants “because the series was not a documentary in any sense of the word, but a
Why the Fight is Personal
June 17, 2019
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I am so honored to work with the #MEAction community on a daily basis. Our organization is fighting hard everyday to communicate the truth about myalgic encephalomyelitis (ME) – to shout it out loud and clear – to the world. My role as the #MEAction Editor & Communications Manager is to support, guide and spearhead