Please join us for the monthly Advocacy working group meeting. We now meet on the 3rd Thursday to work on our advocacy projects. The purpose of the advocacy meeting is to provide project updates, coordinate volunteers, and work together on current projects. Together, we make a difference. Arizona advocates, we need you there! Zoom: tinyurl.com/meactionaz …
On Tuesday 24th August at 5pm, we’re holding a community Q&A, and will be joined by two of the NICE committee members, who have spent almost 3 years working on the new ME/CFS guideline.
#MEAction and and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM).You can read more about our proposal in articles we've published here and here. Or you can find all the information at our …
NCHS ICD-10-CM Coordination and Maintenance Committee meeting Read More »
#MEAction is excited to interview ME advocate and author Jean Meltzer who just released her first novel, The Matzah Ball, which features a protagonist with ME on Friday, October 22nd on Facebook Live at 11am PST/2pm EST. We will be discussing the book, why it was important to write the lead character with ME, and …
Facebook Live Interview with Author Jean Meltzer–The Matzah Ball Read More »
NIH ME/CFS Advocacy CallJoin the webinar: https://nih.zoomgov.com/j/1616894211?pwd=ZUlYdld1UHBEYStzU2JiTHZFRDc1UT09Passcode: 816676Pre-registration is not required.From: https://www.nih.gov/mecfs/eventsSee our list of questions submitted in advance to the Trans-NIH ME/CFS Working Group.https://www.meaction.net/wp-content/uploads/2021/10/NIH-telebriefing-questions-Oct-2021.pdf
Please join us for the monthly California #MEAction support and informational meeting. The purpose of the meeting is to bring together Californians who have ME, along with their family and friends, to discuss their concerns, let out their feelings, exchange information, and develop advocacy strategy. Especially in these times, many of us are at loose …
Everyone is welcome to join us for our monthly planning meeting and contribute or just listen in! We meet on the 4th Friday of the month from 10 -11:30 am MT. Click the website link below to join by computer. Or, join by phone: Dial +1.408.317.9253 if you’re in the US +44.203.608.5256 for UK +61.2.8103.4256 …
On Tuesday 30th November at 5pm, we’re holding a community Q&A, and will be joined by two of the NICE committee members, who have spent almost 3 years working on the new ME/CFS guideline.
As part of our end-of-year Giving Adventure, #MEAction is excited to announce our Holiday D&D Event! We have an exciting line-up of guests who will be joining us for a one-hour session of Dungeons & Dragons live-streamed on Twitch right at this link: https://www.twitch.tv/meactionnetworkDo you need an account to watch? No, you don’t! Simply click …
For crossing the $50,000 mark in our end-of-year Giving Adventure, we are pleased to offer an exciting AMA with our Press and Public Relations Manager, Adriane Tillman, and our Director of Scientific and Medical Outreach, Jaime Seltzer! The AMA will last for an hour on Monday, December 6th at 11am PST. Join us at the …
Ask me Anything: with Adriane Tillman and Jaime Seltzer Read More »
#MEAction hosted a live Q&A and reading with Peter Staley, famous HIV activist. Peter gives a reading from his new book, Never Silent: ACT UP and My Life in Activism. The event was moderated by #MEAction NY co-leader and long-time activist, Terri Wilder.#MEAction co-founder Jennifer Brea's interview with Peter Staley in 2014 can be viewed …
As a way to celebrate and highlight the amazing artists within our community, please join us for a live event on Wednesday, December 15th at 12pm PST/3pm EST for our Winter Virtual Artist Salon featuring artists and their work. This will be a fun gathering where artists will share their work and the inspiration for …
