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ME PARTNER CAREGIVERS SUPPORT GROUP

The Partner Caregivers Support Group invites caregivers who are spouses, partners, or significant others of people with ME/CFS or Long COVID (and associated conditions) to join us to connect, share, and support each other. We strive to provide an affirming, safe place to share for all people regardless of sexual orientation and gender identity. While …

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Free

#MEACTION GEORGIA SUPPORT CALL

Join #MEAction GA the 3rd Thursday of the month at 1pm EST for our monthly support call. All pw/ME are welcome and no previous attendance is needed. Topics will vary from month to month and no preparation is required. Come as you are for this virtual meeting! We welcome all people with ME/CFS and Long …

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Free

#MEACTION GEORGIA ADVOCACY MEETING

Please join us for the monthly #MEAction Georgia Advocacy meeting. All people with ME/CFS are welcome. We meet on the first Thursday of the month at 1:00 pm Eastern time. The Agenda will change from month-to-month but open discussion is always encouraged and new-comers are welcome. The purpose of the meeting is to form a …

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Free

Community Q&A with PolyBio

1:00pm EDT (New York) | 5:00pm GMT (London) UPDATE:The event is very full, so not everyone will be able to be on Bluejeans (info pasted below). We are planning to both a) record the event and b) livestream on Facebook. So if you do not get into the bluejeans call, do not worry. You can either …

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Free

#MEAction California Call

Please join us for the monthly California #MEAction support and informational meeting every last Thursday of the month at 6:30 pm (PDT). The purpose of the meeting is to bring together Californians who have ME, along with their family and friends, to discuss their concerns, let out their feelings, exchange information, and develop advocacy strategy. Especially …

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NIH ME/CFS Telebriefing

The Trans-NIH ME/CFS Working Group will hold a telebriefing about updates on NIH’s efforts to advance research on ME/CFS on November 5, 2020, 11:00 am until 12:00 pm ET. Read more about #MEAction's letter to NIH on accelerating ME/CFS research here. The guest speaker will be Allison Kanas, Administrative Director & Director, Community Outreach & Engagement at the Center for Solutions for …

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Free

First NICE ME/CFS guideline consultation community call 17th Nov

Your input is vital as #MEAction UK responds to the consultation on the draft ME/CFS guideline. We want you to steer our response and explain what changes you think need to be made to this guideline before the final version is published in April 2021.

Free
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