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#MEAction Town hall on CDC draft evidence review of ME/CFS treatments

Update: slide deck for town hall The U.S. Centers for Disease Control and Prevention (CDC) published a notice of request for public comments on its systematic review draft report for diagnosis and treatment of ME/CFS which will remain open until August 16, 2021. To learn more about the CDC draft evidence review and #MEAction advocacy …

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Free

Town Hall Q&A on #MEAction response to CDC Review

Attend #MEAction town hall meeting on Monday, August 9th for a Q&A on our draft response to the CDC systematic evidence review for ME/CFS treatments. -----------------Meeting URLhttps://bluejeans.com/422344930/2884 Meeting ID422 344 930 Participant Passcode2884 Want to dial in from a phone?Dial one of the following numbers:+1.408.317.9253 (US (Primary))Enter the meeting ID and passcode followed by #------------------- …

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Free

#MEACTION ARIZONA 3rd Thursday — Advocacy Call

Please join us for the monthly Advocacy working group meeting. We now meet on the 3rd Thursday to work on our advocacy projects. The purpose of the advocacy meeting is to provide project updates, coordinate volunteers, and work together on current projects. Together, we make a difference.  Arizona advocates, we need you there! Zoom: tinyurl.com/meactionaz …

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NCHS ICD-10-CM Coordination and Maintenance Committee meeting

#MEAction and and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM).You can read more about our proposal in articles we've published here and here. Or you can find all the information at our …

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Facebook Live Interview with Author Jean Meltzer–The Matzah Ball

#MEAction is excited to interview ME advocate and author Jean Meltzer who just released her first novel, The Matzah Ball, which features a protagonist with ME on Friday, October 22nd on Facebook Live at 11am PST/2pm EST. We will be discussing the book, why it was important to write the lead character with ME, and …

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Free

Telebriefing by Trans-NIH ME/CFS Working Group

NIH ME/CFS Advocacy CallJoin the webinar: https://nih.zoomgov.com/j/1616894211?pwd=ZUlYdld1UHBEYStzU2JiTHZFRDc1UT09Passcode: 816676Pre-registration is not required.From: https://www.nih.gov/mecfs/eventsSee our list of questions submitted in advance to the Trans-NIH ME/CFS Working Group.https://www.meaction.net/wp-content/uploads/2021/10/NIH-telebriefing-questions-Oct-2021.pdf

#MEAction California Monthly Meeting

Please join us for the monthly California #MEAction support and informational meeting. The purpose of the meeting is to bring together Californians who have ME, along with their family and friends, to discuss their concerns, let out their feelings, exchange information, and develop advocacy strategy. Especially in these times, many of us are at loose …

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Free

#MEAction Holiday D&D Event

As part of our end-of-year Giving Adventure, #MEAction is excited to announce our Holiday D&D Event! We have an exciting line-up of guests who will be joining us for a one-hour session of Dungeons & Dragons live-streamed on Twitch right at this link: https://www.twitch.tv/meactionnetworkDo you need an account to watch? No, you don’t! Simply click …

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