Join The Walking Spondies and My Several Worlds on May 14th for #MillionsMissing Taiwan – the first MECFS event of its kind in Taiwan. The Walking Spondies are walking for the entire month of May to raise awareness for ME/CFS and related disease. On May 14th, we're asking our team members and guests to GO …
At #MEAction we are all about bringing people together. So we are excited to announce the return of our community Gatheround (previously known as Icebreaker) events for #MillionsMissing! Join the #MEAction community for a fun gathering, where you will be able to connect with people around the globe, participate in easy get-to-know-you games, and chat with …
#MillionsMissing: “GatherOUND” Event–Community Meet & Greet Read More »
Join the Belgique ME community for their #MillionsMissing 2021 Virtual Event! This will be an opportunity to join together as a community, share our stories, and discuss ways to take action. We can’t wait to see you there. Here is the link to join the virtual event: Also, please RSVP at the Facebook Event, so …
Join #MEAction Maryland in your PJs with your favorite filled mug & a treat as we discuss ways to rest & recover on Blue Sunday.Here is the agenda for the event: Welcome - rest is productiveWhat is self-care for M.E. discussionBed Yoga demoJoin our #MillionsMissing asksUse this link to join event:
Update: slide deck for town hall The U.S. Centers for Disease Control and Prevention (CDC) published a notice of request for public comments on its systematic review draft report for diagnosis and treatment of ME/CFS which will remain open until August 16, 2021. To learn more about the CDC draft evidence review and #MEAction advocacy …
#MEAction Town hall on CDC draft evidence review of ME/CFS treatments Read More »
Attend #MEAction town hall meeting on Monday, August 9th for a Q&A on our draft response to the CDC systematic evidence review for ME/CFS treatments. -----------------Meeting URLhttps://bluejeans.com/422344930/2884 Meeting ID422 344 930 Participant Passcode2884 Want to dial in from a phone?Dial one of the following numbers:+1.408.317.9253 (US (Primary))Enter the meeting ID and passcode followed by #------------------- …
Town Hall Q&A on #MEAction response to CDC Review Read More »
Please join us for our 2 monthly meetings. We meet on the 2nd Thursday for support and discussion of treatments, and on the 3rd Thursday to work on our advocacy projects. Zoom: tinyurl.com/meactionaz Call in: (602) 753-0140Meeting ID: 949 275 8687Passcode: 4455 The purpose of the support meeting is to provide support to Arizona people …
Please join us for the monthly Advocacy working group meeting. We now meet on the 3rd Thursday to work on our advocacy projects. The purpose of the advocacy meeting is to provide project updates, coordinate volunteers, and work together on current projects. Together, we make a difference. Arizona advocates, we need you there! Zoom: tinyurl.com/meactionaz …
On Tuesday 24th August at 5pm, we’re holding a community Q&A, and will be joined by two of the NICE committee members, who have spent almost 3 years working on the new ME/CFS guideline.
#MEAction and and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM).You can read more about our proposal in articles we've published here and here. Or you can find all the information at our …
NCHS ICD-10-CM Coordination and Maintenance Committee meeting Read More »
#MEAction is excited to interview ME advocate and author Jean Meltzer who just released her first novel, The Matzah Ball, which features a protagonist with ME on Friday, October 22nd on Facebook Live at 11am PST/2pm EST. We will be discussing the book, why it was important to write the lead character with ME, and …
Facebook Live Interview with Author Jean Meltzer–The Matzah Ball Read More »
NIH ME/CFS Advocacy CallJoin the webinar: https://nih.zoomgov.com/j/1616894211?pwd=ZUlYdld1UHBEYStzU2JiTHZFRDc1UT09Passcode: 816676Pre-registration is not required.From: https://www.nih.gov/mecfs/eventsSee our list of questions submitted in advance to the Trans-NIH ME/CFS Working Group.https://www.meaction.net/wp-content/uploads/2021/10/NIH-telebriefing-questions-Oct-2021.pdf
