Second NICE ME/CFS guideline consultation community call – 23rd Nov
The second of two calls facilitating community discussion of the draft ME/CFS guideline, and inputting to #MEAction UK's response to the consultation.
Free
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Advocacy
#MEAction Town hall on CDC draft evidence review of ME/CFS treatments
Update: slide deck for town hall The U.S. Centers for Disease Control and Prevention (CDC) published a notice of request for public comments on its systematic review draft report for diagnosis and treatment of ME/CFS which will remain open until August 16, 2021. To learn more about the CDC draft evidence review and #MEAction advocacy …
#MEAction Town hall on CDC draft evidence review of ME/CFS treatments Read More »
Free
Town Hall Q&A on #MEAction response to CDC Review
Attend #MEAction town hall meeting on Monday, August 9th for a Q&A on our draft response to the CDC systematic evidence review for ME/CFS treatments. -----------------Meeting URLhttps://bluejeans.com/422344930/2884 Meeting ID422 344 930 Participant Passcode2884 Want to dial in from a phone?Dial one of the following numbers:+1.408.317.9253 (US (Primary))Enter the meeting ID and passcode followed by #------------------- …
Town Hall Q&A on #MEAction response to CDC Review Read More »
Free
#MEACTION ARIZONA 2ND Thursday — Support Call
Please join us for our 2 monthly meetings. We meet on the 2nd Thursday for support and discussion of treatments, and on the 3rd Thursday to work on our advocacy projects. Zoom: tinyurl.com/meactionaz Call in: (602) 753-0140Meeting ID: 949 275 8687Passcode: 4455 The purpose of the support meeting is to provide support to Arizona people …
#MEACTION ARIZONA 3rd Thursday — Advocacy Call
Please join us for the monthly Advocacy working group meeting. We now meet on the 3rd Thursday to work on our advocacy projects. The purpose of the advocacy meeting is to provide project updates, coordinate volunteers, and work together on current projects. Together, we make a difference. Arizona advocates, we need you there! Zoom: tinyurl.com/meactionaz …
NCHS ICD-10-CM Coordination and Maintenance Committee meeting
#MEAction and and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM).You can read more about our proposal in articles we've published here and here. Or you can find all the information at our …
NCHS ICD-10-CM Coordination and Maintenance Committee meeting Read More »
Telebriefing by Trans-NIH ME/CFS Working Group
NIH ME/CFS Advocacy CallJoin the webinar: https://nih.zoomgov.com/j/1616894211?pwd=ZUlYdld1UHBEYStzU2JiTHZFRDc1UT09Passcode: 816676Pre-registration is not required.From: https://www.nih.gov/mecfs/eventsSee our list of questions submitted in advance to the Trans-NIH ME/CFS Working Group.https://www.meaction.net/wp-content/uploads/2021/10/NIH-telebriefing-questions-Oct-2021.pdf
#MEAction California State Chapter Monthly Meetings
Please join us for the monthly California #MEAction support and informational meeting every last Thursday of the month at 6:00 pm (PDT). The purpose of the meeting is to bring together Californians who have ME, along with their family and friends, to discuss their concerns, let out their feelings, exchange information, and develop advocacy strategy. …
#MEAction California State Chapter Monthly Meetings Read More »
#MEAction California State Chapter Monthly Meetings
Please join us for the monthly California #MEAction support and informational meeting every last Thursday of the month at 6:00 pm (PDT). The purpose of the meeting is to bring together Californians who have ME, along with their family and friends, to discuss their concerns, let out their feelings, exchange information, and develop advocacy strategy. …
#MEAction California State Chapter Monthly Meetings Read More »
#MillionsMissing September 2022 Protest- Washington, DC: VIRTUAL Town Hall
Meet virtually to hear details, brainstorm, and give input on our protest in Washington, DC! We will discuss both the in-person and online components of our protest.This town hall will only focus on the US based #MillionsMissing Protest. We will be using BlueJeans for this virtual call. You can joining the meeting here: https://bluejeans.com/487078755/6215
Free
#MillionsMissing September 2022- Washington, DC: A Virtual Training for Those Protesting In-Person
Meet virtually to train for our in-person #MillionsMissing September 2022 Protest with an experienced lawyer and activist on the purpose of protest, how to do both civil disobedience and lawful protest. This training for protesting in-person, will only focus on the US based #MillionsMissing Protest.We will be using BlueJeans for this virtual call. You can …
Free
#MillionsMissing September 2022 Protest: A Virtual Training for Those Taking Action From Home
Gather virtually to discuss plans and get equipped to protest from your home and demand action and equity for people with ME and Long COVID. We will be using BlueJeans for this virtual call. You can joining the meeting here: https://bluejeans.com/797168512/8857
Free