Scientific & clinical
Ongoing Projects
Note: you should only be able to access if you have been invited to participate in these projects. If you are having trouble with access, ensure you are signed into the account through which you were provided access before continuing, or reach out to Jaime Seltzer.
Pacing Narrative Study
MEAction and Mayo Clinic produced the Narrative Pacing Survey, released in Summer 2024. Now, this data is being used to produce patient education materials in collaboration with Mayo Clinic and U of Houston ClearLake researchers.
Seasonality Study
Using both qualitative and quantitative sources of data, including from the Symptom Cluster Characterization study, Pacing Study, and EHR data, we are exploring the seasonal effects on ME/CFS symptoms and pathology.
RECOVER TLC Submissions
RECOVER TLC asked members of the community to submit responses regarding which drugs and other interventions ought to be trialed for Long COVID. MEAction solicited responses from the community and will submit as an organization.