IACFS/ME Workshop 2022
Challenges in the Development of Clinical Studies in ME/CFS
materials for the July 2022 IACFS/ME Workshop
Planning & Budgeting for Research Partners with Lived Experience
ACTIVITY 1
In this activity, we explore how people with lived experience can be integrated into the processes of conducting research to improve outcomes.
RECRUITING UNDERREPRESENTED POPULATIONS IN ME/CFS RESEARCH
ACTIVITY 2
In this activity, we’ll apply some recruitment strategies to help increase BIPOC patients, the severely ill, and men often go undiagnosed, and are under-represented in studies.
Sedentary controls are recommended in order to rule out deconditioning as a potential confounding factor.
Study feasibility committee resources
You can access the Study Feasibility Committee-created resources funded by US Public Health Services grant 5U54A/138370 and 5U24NS105535 by clicking below.