NCHS ICD-10-CM Coordination and Maintenance Committee meeting

#MEAction and and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM).

You can read more about our proposal in articles we’ve published here and here. Or you can find all the information at our #CodeUsCountUsCureUs petition website: https://bit.ly/CodeUsCountUsCureUs

Sign the petition to communicate your support for our organizations joint proposal to NCHS to track ME/CFS.

NCHS will discuss the topic of ME/CFS coding changes on September 15, 2021 at 2:15 EST at its ICD-10-CM Coordination and Maintenance Committee meeting. Note, this is the estimated start time for the ME/CFS topic, not the meeting in general, you may to join earlier than this. The precise end-time is unknown. NCHS title for this topic discussion is “Postviral and Related Fatigue Syndrome.”

The NCHS meeting packet can be found here and includes the proposal summary and NCHS’ recommended coding changes on page 169. The meeting packet also includes directions on how to join the meeting on page 7. Limited time will be provided in the meeting for questions and comments.

NCHS provides an option for joining by Zoom which will all you to also view slides and ask questions during the Q&A portion. NCHS also provides a listen-only phone dial-in option.

If addition to signing the petition, you also send a personal comment to NHCS, you can do so until November 15, 2021. We’ve provided additional information on how to submit personal comments here.