#MEAction Town hall on CDC draft evidence review of ME/CFS treatments

Update: slide deck for town hall

The U.S. Centers for Disease Control and Prevention (CDC) published a notice of request for public comments on its systematic review draft report for diagnosis and treatment of ME/CFS which will remain open until August 16, 2021.

To learn more about the CDC draft evidence review and #MEAction advocacy please see this our full article explainer on this topic.

#MEAction will be carefully evaluating the entire systematic review draft report and preparing a detailed response to CDC, which we will make available beforehand to anyone who wants to sign-on and support. Join us on Wednesday, June 23rd at 3pm ET for a community town hall. We will share our interim evaluation of the CDC’s draft evidence review and discuss ways we can oppose this report causing further harm to people living with ME.

While anyone can submit a public comment on the draft report, #MEAction will not be mobilizing identical individual comment submissions with the same technical analysis or revision recommendations, as CDC has said it will simply remove any duplicative comments. You will have a chance to review and sign onto #MEAction’s technical comments before we submit them.

As necessary as a technical response is to this flawed evidence review, it is clearly not sufficient to stop the cycle of harm or to force federal agency accountability. For years, advocates have been giving the same fundamental feedback on the methodological flaws and inadequate protocols of these evidence reviews for dealing with an evidence base that has been polluted by PACE and similarly flawed studies, only for CDC to ignore them. #MEAction is committed to equipping our community for activism that channels all of the wisdom and of the rage of those who have come before us, and to transform our individual suffering into community power. Together we can hold federal agency leaders accountable and demand our government work for people with ME.

Meeting URL: https://bluejeans.com/286500848/3222

Meeting ID: 286 500 848

Participant Passcode: 3222

Want to dial in from a phone? Dial one of the following numbers:

+1.408.317.9253 (US (Primary))

Enter the meeting ID and passcode followed by #