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#MEAction: Congress Is Hearing from Us
#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap, Medicaid, and telehealth. We’ve been partnering with #NotJustFatigue on setting up congressional meetings in order to ask our elected officials for their support in making funding of the ME/CFS Research Roadmap a reality. #MEAction State Chapter
Office of Long COVID at HHS Closing
Ian Simon, the head of the Long COVID Office at Department of Health and Human Services (HHS), released the following statement to coworkers: Dear Colleagues, We are writing to let you know that the Office of Long COVID Research and Practice will be closing as part of the administration’s reorganization coming this week. We are
Trump Cuts Funding for ME/CFS Centers at Columbia University
We are writing to you with an urgent call to action. The Trump administration has cut funding for the Center for Solutions for ME/CFS at Columbia University as part of a broader $400 million funding termination at the university. This devastating decision includes the loss of NIH funding for one of the nation’s few Collaborative Research
Press Release: Advocates Urge Administration to Reinstate Long COVID Advisory Committee
Press Contact: #MEAction: press@meaction.net Patient & Expert Voices Must Be Heard: Advocates Urge Administration to Reinstate Long COVID Advisory Committee #MEAction and the Patient-Led Research Collaborative – leading organizations advocating for people with Long
Support Keeping Telehealth – Take Action Today!
Expanded telehealth coverage for Medicare is set to expire at the end of this year, December 31st! Learn More #MEAction knows losing expanded telehealth will be a problem for many in our community and the wider disability community. While this action focuses on keeping the expanded Medicare coverage for telemedicine, we know that what Medicare
