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Day: November 6, 2015

Letter: Ask HHS to Investigate PACE

November 6, 2015 No Comments

Dear #MEAction users, Please find below a letter to HHS (CDC and AHRQ) calling on them to investigate the PACE trial and take whatever steps are needed to protect patients. This includes revising the AHRQ Evidence Review and CDC clinical guidelines to remove recommendations such as cognitive behavior therapy (CBT) and graded exercise (GET) that are based on

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Government orders release of PACE trial data

November 6, 2015 17 Comments

The Information Commissioner’s Office (ICO) has ordered Queen Mary University of London to release anonymized PACE trial data to an unnamed complainant. Queen Mary has 28 days to appeal the decision. The report outlines the scope of the data requested, Queen Mary’s arguments for refusing to release the data and the Commissioner’s justification for siding with the patient requesting the

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